Women and Epilepsy…a New Push for Advocacy

Epilepsy Advocate has launched a new campaign, Women Succeeding with Epilepsy. It’s a super collection of articles and webcasts that are available to all who wish to explore this interesting world of women living with the condition.

It’s true, we have some issues that differ from men. Can I have children if I also have seizures? How do hormones affect my Epilepsy? Can I raise a family if I have Epilepsy? How about something like osteoporosis? Is there a greater risk with Epilepsy?

I got the chance, through Epilepsy Advocate and Healthy Women, to speak to two women who are advocates for women living with Epilepsy.

Blanca Vazquez, M.D., is an attending physician in Neurology and director of Clinical Trials and Outpatient Services at the Comprehensive Epilepsy Center at New York University Langone Medical Center in New York.  And, Elizabeth Battaglino Cahill, RN, is the executive director of HealthyWomen, a non-profit organization providing women with in-depth, objective, medically-approved information on a broad range of women’s health issues.

{ 3 comments… read them below or add one }

bryan farley July 27, 2010 at 4:20 pm

another great post.

something I noticed on the Epilepsy Advocate FB page… notice how many woman are on the fan page compared to women. And yet, more men than women have epilepsy.

something that I may want to discuss in the future is the special concerns that many men have in dealing with epilepsy. Somehow, we seem to have been treating the least common denominator. We keep it quiet, and then pretend that hormones or even individual health issues might affect how medication levels affect our illness.

Until recently, I never considered how women struggle with pregnancy and epilepsy. I wonder if women consider how men struggle with an extra burden of silence.

bryan farley July 27, 2010 at 4:23 pm

should have proofed… I meant, compare the number of men and women on Epilepsy Advocate’s FB fan page. I think if you were to look at the gender break down of most support groups you would find something similar. Even looking at how parents of children with epilespy become involved… it is often the mothers. This does not mean mothers care more, at least not to me, it just tells me that mothers know where to get help.

if “talking about it” helps, who is not getting help?

Alysse July 27, 2010 at 4:28 pm

Bryan…thanks for your comments, and I knew exactly what you meant!
This is a super topic, and it really makes me think–I wonder how many men keep their Epilepsy concealed–even from family, especially those who are the so-called bread winners of the family, etc.??

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