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	<title>Comments on: To Have or Not to Have&#8230;the Question of Auras</title>
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		<title>By: Alysse</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-614</link>
		<dc:creator>Alysse</dc:creator>
		<pubDate>Sun, 01 Aug 2010 11:49:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-614</guid>
		<description>Thank you for your comments!
With auras--I usually get that question, although these days, I&#039;ve been with my epileptologist for long enough--he typically asks me if I&#039;m having the same type of auras or if I&#039;m experiencing &#039;new&#039; ones. But, I&#039;m with you...they are very strange sensations! All the very best...
Alysse M.</description>
		<content:encoded><![CDATA[<p>Thank you for your comments!<br />
With auras&#8211;I usually get that question, although these days, I&#8217;ve been with my epileptologist for long enough&#8211;he typically asks me if I&#8217;m having the same type of auras or if I&#8217;m experiencing &#8216;new&#8217; ones. But, I&#8217;m with you&#8230;they are very strange sensations! All the very best&#8230;<br />
Alysse M.</p>
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		<title>By: recgrl09</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-611</link>
		<dc:creator>recgrl09</dc:creator>
		<pubDate>Sun, 01 Aug 2010 08:36:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-611</guid>
		<description>I had auras. They were really helpful. I knew from descriptions what my seizures looked like and would not want people to see me(or hear me) so I would go hide. They weren&#039;t grand mal seizures so I wasn&#039;t in real danger. Plus if someone did see me, I would get sent home from work and school if I got caught. But I always made sure I was somewhere safe. 
  Of course then there&#039;s the old, &quot;Please describe what your aura feels like.&quot; I hate that! Its so hard to describe. They can&#039;t understand what I&#039;m trying to tell them. Its not a taste or sound just some weird sensation I get.</description>
		<content:encoded><![CDATA[<p>I had auras. They were really helpful. I knew from descriptions what my seizures looked like and would not want people to see me(or hear me) so I would go hide. They weren&#8217;t grand mal seizures so I wasn&#8217;t in real danger. Plus if someone did see me, I would get sent home from work and school if I got caught. But I always made sure I was somewhere safe.<br />
  Of course then there&#8217;s the old, &#8220;Please describe what your aura feels like.&#8221; I hate that! Its so hard to describe. They can&#8217;t understand what I&#8217;m trying to tell them. Its not a taste or sound just some weird sensation I get.</p>
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		<title>By: Phil Gattone</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-518</link>
		<dc:creator>Phil Gattone</dc:creator>
		<pubDate>Tue, 20 Jul 2010 01:45:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-518</guid>
		<description>I have auras but don&#039;t have seizures afterwards. I get the feeling of extreme anxiousness. They last about 30 seconds. It&#039;s kind of like the feeling of going down a roller coaster or an elevator. I have found that if I take deep breaths and just repeat in my head that everything is ok that the aura goes away.</description>
		<content:encoded><![CDATA[<p>I have auras but don&#8217;t have seizures afterwards. I get the feeling of extreme anxiousness. They last about 30 seconds. It&#8217;s kind of like the feeling of going down a roller coaster or an elevator. I have found that if I take deep breaths and just repeat in my head that everything is ok that the aura goes away.</p>
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		<title>By: Trevor Hilliar</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-501</link>
		<dc:creator>Trevor Hilliar</dc:creator>
		<pubDate>Fri, 16 Jul 2010 14:27:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-501</guid>
		<description>Jeff,
Thank you for the comment.  From my first seizure (Jan 1, 1999, the day before the full moon) to my last seizure, the day before the most recent full moon, I have tracked the dates of my seizures and their relationship to the moon.  I have used SeizureTracker.com A site recomended by Alysse, to keep track of them, and then looked back at the moon callendar and compared dates.  While my doctor dismisses the connection, I know it exists, and I am going to begin adding another pill to my daily routine a few days before the full moon.  Since I am not near the maximum dosage of the meds I take, I feel this is a safe, preventative course of action.  I hope it will have the desired effect.
Thanks again for the comment.
Trevor</description>
		<content:encoded><![CDATA[<p>Jeff,<br />
Thank you for the comment.  From my first seizure (Jan 1, 1999, the day before the full moon) to my last seizure, the day before the most recent full moon, I have tracked the dates of my seizures and their relationship to the moon.  I have used SeizureTracker.com A site recomended by Alysse, to keep track of them, and then looked back at the moon callendar and compared dates.  While my doctor dismisses the connection, I know it exists, and I am going to begin adding another pill to my daily routine a few days before the full moon.  Since I am not near the maximum dosage of the meds I take, I feel this is a safe, preventative course of action.  I hope it will have the desired effect.<br />
Thanks again for the comment.<br />
Trevor</p>
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		<title>By: Jeff Nelson</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-492</link>
		<dc:creator>Jeff Nelson</dc:creator>
		<pubDate>Tue, 13 Jul 2010 16:29:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-492</guid>
		<description>Alysse....Definitely keep testing! I have a feeling, as I always have since the first time it worked, that there was something to this practice I started years ago. As I mentioned, it doesn&#039;t always work, though getting free from one from time to time is a blessing. 
Trevor....by the way, after years of reading stuff about &quot;E&quot; on the net. and books about &quot;E&quot;, I&#039;ve never heard anyone other than myself mention things about &quot;E&quot; related to the full moon. Over the years, I&#039;ve noticed that my seizures tend to increase as the moon gets to full. Same thing with seasons. As time gets closer to a direct summer, or a direct winter, my seizures increase as well. I&#039;ve always wondered if these things had anything to do with how much our bodies are filled with water, and react to moon or season changes? I know these things affect the ocean tides, so that&#039;s what got me wondering about weather my &quot;E&quot; was possibly reacting in a similar form? I&#039;m looking to see if I&#039;m the only one besides Trevor who has noticed this?</description>
		<content:encoded><![CDATA[<p>Alysse&#8230;.Definitely keep testing! I have a feeling, as I always have since the first time it worked, that there was something to this practice I started years ago. As I mentioned, it doesn&#8217;t always work, though getting free from one from time to time is a blessing.<br />
Trevor&#8230;.by the way, after years of reading stuff about &#8220;E&#8221; on the net. and books about &#8220;E&#8221;, I&#8217;ve never heard anyone other than myself mention things about &#8220;E&#8221; related to the full moon. Over the years, I&#8217;ve noticed that my seizures tend to increase as the moon gets to full. Same thing with seasons. As time gets closer to a direct summer, or a direct winter, my seizures increase as well. I&#8217;ve always wondered if these things had anything to do with how much our bodies are filled with water, and react to moon or season changes? I know these things affect the ocean tides, so that&#8217;s what got me wondering about weather my &#8220;E&#8221; was possibly reacting in a similar form? I&#8217;m looking to see if I&#8217;m the only one besides Trevor who has noticed this?</p>
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		<title>By: Alysse</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-488</link>
		<dc:creator>Alysse</dc:creator>
		<pubDate>Mon, 12 Jul 2010 16:31:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-488</guid>
		<description>Jeff...this is VERY interesting!...the fact that you can actually move away from having a seizure by doing something during your aura! I&#039;m amazed. I am going to have to try this--it&#039;s almost like you are mentally sending the seizure away.
I do know that when I am having a seizure, I &#039;test&#039; myself. Most times, I can&#039;t remember my husband&#039;s name, my daughter&#039;s name, the dogs&#039; names...so I challenge myself and try to recall these until the seizure is finished. But, these are the smaller ones, the grand mal seizures just wrap me up and take me with them.
Thanks again for following the site--</description>
		<content:encoded><![CDATA[<p>Jeff&#8230;this is VERY interesting!&#8230;the fact that you can actually move away from having a seizure by doing something during your aura! I&#8217;m amazed. I am going to have to try this&#8211;it&#8217;s almost like you are mentally sending the seizure away.<br />
I do know that when I am having a seizure, I &#8216;test&#8217; myself. Most times, I can&#8217;t remember my husband&#8217;s name, my daughter&#8217;s name, the dogs&#8217; names&#8230;so I challenge myself and try to recall these until the seizure is finished. But, these are the smaller ones, the grand mal seizures just wrap me up and take me with them.<br />
Thanks again for following the site&#8211;</p>
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		<title>By: Trevor Hilliar</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-486</link>
		<dc:creator>Trevor Hilliar</dc:creator>
		<pubDate>Sun, 11 Jul 2010 16:54:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-486</guid>
		<description>Great comments from Jeff and Mary.  I have a similar experience to Jeff&#039;s, and have also found that I can avert a seizure despite having an aura.

From the begining of my adult onset seizures, my doctor asked if I had any auras.  While not knowing what an aura felt like, I said &quot;no.&quot;  Yet, all my seizures were grand mal,and all immediately upon waking in the morning, within a day of the full moon.
Only recently have I begun to have seizures during the day, and I have discovered they are preceded by a feiling of dizziness.  Yet I have begun to have what I believe are auras.  I experience the deja vu feeling, and also a warm feeling rising up from my gut.  I feel everyday acts like washing my hands in cold water or shaving will begin these feelings, and I can avert them from continuing or becoming a seizure through sitting down and deep breathing.
For what it is worth, my doctor says this could help us to find a therapudic level of medication by using the presence, or lack there of, as an indicator of how effective the levels are.

Thanks for the comments.</description>
		<content:encoded><![CDATA[<p>Great comments from Jeff and Mary.  I have a similar experience to Jeff&#8217;s, and have also found that I can avert a seizure despite having an aura.</p>
<p>From the begining of my adult onset seizures, my doctor asked if I had any auras.  While not knowing what an aura felt like, I said &#8220;no.&#8221;  Yet, all my seizures were grand mal,and all immediately upon waking in the morning, within a day of the full moon.<br />
Only recently have I begun to have seizures during the day, and I have discovered they are preceded by a feiling of dizziness.  Yet I have begun to have what I believe are auras.  I experience the deja vu feeling, and also a warm feeling rising up from my gut.  I feel everyday acts like washing my hands in cold water or shaving will begin these feelings, and I can avert them from continuing or becoming a seizure through sitting down and deep breathing.<br />
For what it is worth, my doctor says this could help us to find a therapudic level of medication by using the presence, or lack there of, as an indicator of how effective the levels are.</p>
<p>Thanks for the comments.</p>
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		<title>By: mary</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-484</link>
		<dc:creator>mary</dc:creator>
		<pubDate>Sun, 11 Jul 2010 12:53:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-484</guid>
		<description>thanks!
it&#039;s so great to read ANYTHING about auras. i have them too, and no one ever knows what i&#039;m talking about. so i&#039;ve pretty much stopped. but your letter and the one you responded to are really refreshing.
i&#039;ve also tried controlling them myself with some degree of success.
... i guess.
although i have wondered how you would measure the success of trying to control these things on your own.
but does it really matter if you feel better?!
probably not. 
i have mentioned this to my doctor and she looked at me like i was nuts, and shrugged it off.
i guess we&#039;re all used to being looked at like that by now.
;)
anyway, 
thanks again!</description>
		<content:encoded><![CDATA[<p>thanks!<br />
it&#8217;s so great to read ANYTHING about auras. i have them too, and no one ever knows what i&#8217;m talking about. so i&#8217;ve pretty much stopped. but your letter and the one you responded to are really refreshing.<br />
i&#8217;ve also tried controlling them myself with some degree of success.<br />
&#8230; i guess.<br />
although i have wondered how you would measure the success of trying to control these things on your own.<br />
but does it really matter if you feel better?!<br />
probably not.<br />
i have mentioned this to my doctor and she looked at me like i was nuts, and shrugged it off.<br />
i guess we&#8217;re all used to being looked at like that by now.<br />
 <img src='http://www.brainthunders.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /><br />
anyway,<br />
thanks again!</p>
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		<title>By: Jeff Nelson</title>
		<link>http://www.brainthunders.com/new-posts/to-have-or-not-to-have-the-question-of-auras/comment-page-1/#comment-481</link>
		<dc:creator>Jeff Nelson</dc:creator>
		<pubDate>Sat, 10 Jul 2010 16:37:17 +0000</pubDate>
		<guid isPermaLink="false">http://www.brainthunders.com/?p=699#comment-481</guid>
		<description>From Aura&#039;s back to feeling Normal (or whatever you want to call normal brain activity), and how I found a way to prevent my seizures from time to time!
 
Ahhh...finally some talk about aura&#039;s! Over the years of dealing with Epilepsy I&#039;ve had various kinds of seizures; from Grand Mal, Complex Partial, to my daily staring ones. I guess the doctors would call me one of the lucky ones as well, since I have aura&#039;s. 

Like my seizures, I have had aura&#039;s of various kinds as well. Only rather than the deja&#039; vu&#039;, I have the jama&#039; vu&#039; or the (I&#039;ve been here before, but nothing seems normal or everything seems strange kind). Also, I have the kind where words and numbers begin to make no sense at all or are seemingly impossible to read. The last, and most typical kind I get are the ones that are visual which begin with a bright white dot that flashes in the center of my vision, almost or maybe even exactly to the rate of my heart beat, and all that is in my visual sight seems to slightly twist as if being thrown into a tunnel. 

The first two are the most rare, and I get them only once in a while, though the last one comes daily. If the bright dot flashing in front of me gets brighter and flashes faster, the tunnel vision more twisty, I know I&#039;m just seconds away from a staring seizure!

You mentioned that when you get an aura that you know a seizure is coming. However, over the years of dealing with aura&#039;s, I have tried experimenting with these signals and trying to get my seizures to stop. I have noticed that sometimes, my experiments have worked, and rather than going from aura to seizure, I am able to go from aura back to normal! This doesn&#039;t always work, though sometimes it does, and I will always try.
 
The second I get that bright dot flashing in front of me, and things seem to flip in a twisty tunnel that directs my vision I immediately move my sight around and about from place to place, in depth and in reach. Along with moving my sight about, I try to calm the fear in my mentality and place my thoughts on ANYTHING other than that dot. Something maybe I have done, a place I have been, or something I would like to do. Doing these things together, on occasion, has stopped that dot from flashing, my vision from slight flip twisting, and prevented the hard core tunnel vision staring seizures to start up! 

I&#039;ve never actually mentioned this to anyone, so if anyone out there is someone who is having aura&#039;s and seizures that meds or surgery can&#039;t stop, I would recommend trying to  practice various mental experiments while the aura&#039;s are taking place. Even though I can&#039;t always stop them, it has still worked for me so many times that I can&#039;t but seem to think that there is actually something to this practice. 
For instance, an example might be: If you are one who has daja&#039; vu&#039; aura&#039;s, you might try consistently telling yourself, (while the aura is taking place) &quot;I don&#039;t know these people, or I don&#039;t know where I am.&quot; Regardless of how you may feel. It&#039;s just a thought for ones like those, but it was doing things like this over the years, and doing them over and over again, that helped me find what has seemed to stop my seizures from happening from time to time. That is unless the kindling aura&#039;s may just stop on their own account regardless. Though, it doesn&#039;t hurt to try or ask a doctor about it.</description>
		<content:encoded><![CDATA[<p>From Aura&#8217;s back to feeling Normal (or whatever you want to call normal brain activity), and how I found a way to prevent my seizures from time to time!</p>
<p>Ahhh&#8230;finally some talk about aura&#8217;s! Over the years of dealing with Epilepsy I&#8217;ve had various kinds of seizures; from Grand Mal, Complex Partial, to my daily staring ones. I guess the doctors would call me one of the lucky ones as well, since I have aura&#8217;s. </p>
<p>Like my seizures, I have had aura&#8217;s of various kinds as well. Only rather than the deja&#8217; vu&#8217;, I have the jama&#8217; vu&#8217; or the (I&#8217;ve been here before, but nothing seems normal or everything seems strange kind). Also, I have the kind where words and numbers begin to make no sense at all or are seemingly impossible to read. The last, and most typical kind I get are the ones that are visual which begin with a bright white dot that flashes in the center of my vision, almost or maybe even exactly to the rate of my heart beat, and all that is in my visual sight seems to slightly twist as if being thrown into a tunnel. </p>
<p>The first two are the most rare, and I get them only once in a while, though the last one comes daily. If the bright dot flashing in front of me gets brighter and flashes faster, the tunnel vision more twisty, I know I&#8217;m just seconds away from a staring seizure!</p>
<p>You mentioned that when you get an aura that you know a seizure is coming. However, over the years of dealing with aura&#8217;s, I have tried experimenting with these signals and trying to get my seizures to stop. I have noticed that sometimes, my experiments have worked, and rather than going from aura to seizure, I am able to go from aura back to normal! This doesn&#8217;t always work, though sometimes it does, and I will always try.</p>
<p>The second I get that bright dot flashing in front of me, and things seem to flip in a twisty tunnel that directs my vision I immediately move my sight around and about from place to place, in depth and in reach. Along with moving my sight about, I try to calm the fear in my mentality and place my thoughts on ANYTHING other than that dot. Something maybe I have done, a place I have been, or something I would like to do. Doing these things together, on occasion, has stopped that dot from flashing, my vision from slight flip twisting, and prevented the hard core tunnel vision staring seizures to start up! </p>
<p>I&#8217;ve never actually mentioned this to anyone, so if anyone out there is someone who is having aura&#8217;s and seizures that meds or surgery can&#8217;t stop, I would recommend trying to  practice various mental experiments while the aura&#8217;s are taking place. Even though I can&#8217;t always stop them, it has still worked for me so many times that I can&#8217;t but seem to think that there is actually something to this practice.<br />
For instance, an example might be: If you are one who has daja&#8217; vu&#8217; aura&#8217;s, you might try consistently telling yourself, (while the aura is taking place) &#8220;I don&#8217;t know these people, or I don&#8217;t know where I am.&#8221; Regardless of how you may feel. It&#8217;s just a thought for ones like those, but it was doing things like this over the years, and doing them over and over again, that helped me find what has seemed to stop my seizures from happening from time to time. That is unless the kindling aura&#8217;s may just stop on their own account regardless. Though, it doesn&#8217;t hurt to try or ask a doctor about it.</p>
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