Speak up and Speak out about Living Life with Epilepsy!

I always feel a sense of pride when someone I know speaks honestly and truthfully about living life with Epilepsy. Don’t we need much more of that?! My thanks this morning to Bob Fiore for his tireless work in raising awareness and promoting advocacy. You can read the article on his site, or on the Greenwich Times site. I think Bob would agree…the more we talk and inform, the more attention and understanding for Epilepsy.

I noticed some Facebook posts…people wanting more information on SUDEP. I think we all can agree that not enough attention is paid to seizure deaths. Check out this fantastic organization based in Chicago for lots of resources. And, you can learn what the Stanton family is doing to bring SUDEP out of the shadows. The Danny Did Foundation is also encouraging all of us to bring much more attention to Epilepsy and SUDEP. It’s so easy, just log on and send a note to the President, your Senators, Representatives–anyone who can make a difference…let them know how important research and funding is for Epilepsy.

Speaking up and speaking out CAN help. With 3 million people in the U.S. living with Epilepsy and nearly 50 million people around the world, we can stand up and be noticed!

Bob Fiore of Connecticut Epilepsy Advocate

Bob Fiore of Connecticut Epilepsy Advocate

Danny Stanton

Danny Stanton

{ 5 comments… read them below or add one }

David G. Engledow November 19, 2011 at 7:12 pm

I would like to get the help of the of Epilepsy Advocate and anyone that will support our New Epilepsy Support Group here in Southest Kansas. I will like to help the People here Southeast what Epilepsy is and HELP THE PEOPLE THAT DOES HAVE EPILEPSY. But I can’t do it by myself. So PLEASE send me anything you can so I can pass it out here in Pittsburg, KS. I’m not rich but I’m going to FIGHT FOR IT. The reason I’m wanting to do this is that I just had Surgery that cured my Elipepsy and I want to show people that there coulld be a light at the end of the run. So please can WE ALL WORK TOGETHER, PLEASE ANSWER THIS LETTER.
Thank You,
David G. Engledow
SEK Epilepsy Support Group

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