An interesting article appeared over the weekend on the web on HealthCanal.com. It accuses newspapers…newspapers, not all media…of holding a certain bias against drivers with Epilepsy. I had to read it and re-read it several times before I got the just of it.
In http://www.healthcanal.com/public-health-safety/7331.html a new Mayo Clinic study is quoted. Dr. Joseph F. Drazkowski of the Arizona Mayo Clinic was an author of the study. “We want people to know that not everything you read in the paper is factual, “ he says about those of us with Epilepsy getting behind the wheel of a car.

Image courtesy of Flickr
Granted each state in the U.S. has certain laws which govern whether or not you can drive when you have Epilepsy. In most cases, you must be seizure-free for a certain period of time before you can pick up your keys again. For those of us who experience seizures weekly, if not daily, the chance of starting our engine is diminished. But I do understand what the study is pointing out.
I don’t think these doctors necessarily believe that it’s time for all of us with Epilepsy to get behind the wheel, but it’s definitely time to open up some different dialog. When an accident occurs and the person has had a seizure, it’s more than likely one of the first facts about the incident that’s pointed out. If you’re like me, you’ve noticed it.
Drazkowski also says that there are plenty of people with other medical conditions: cardiac disease, psychiatric conditions and those who are heavily medicated for a variety of ailments, that are allowed to drive without question. Even big-time cold medications can contain warning labels against driving while you take the meds.
Those of us in the Epilepsy community must do our part to erase the stigma and the misconceptions about living with Epilepsy. Yes, it’s true, some people with Epilepsy don’t take the restriction seriously for one reason or another, but by and large, our doctors help us see the rationale about why it can be unsafe to drive when you have frequent seizures. Now, we must make the general public understand.
Jeff Nelson
April 26th, 2010 at 12:37 pm
Hi! Haven’t been on this site in some time. Good to get back! I found this article really interesting. Although I live in CA, I went to the Arizona Mayo Clinic before finally finding my best doctors at the Stanford Clinic in CA. The first neuro. I met with upon rising up in the elevator in the Mayo, (even before looking through my file), immediately began telling me I might die from SEDS after I told them I had epilepsy! I’m thinking great…this place is wonderful!…..NOT!!! What a waste of time that was. By the way, I’m still here, and that was 6 years ago. haha!…….Now about the STIGMA. It’s pretty obvious that the media loves large accidental stories, and the public hungers for them, despite any real contained truth or quality. One of my college professors once said that “People will look for pain and death just to feel better. Even the ‘best’ individuals rubber neck when they see it.” That sounded so crazy and I never understood that at the time, but I think I do now. When it comes to a disability, pain, or death, most people, regardless of not wanting to see it, will take a side glance so they can compare, or tell themselves in their conscious or subconscious, “I’m so glad that’s not where I’m at!” The next time you see someone in a wheelchair with an air tube in their throat, a missing leg, or a major disability,….stand at a distance and watch how many people take side glances! As children we are taught not to stare, and as adults, we have seen it all before, so there is no reason to look any longer, yet……still we do! Those who say they don’t aren’t telling the truth! So why is that? Is it because we feel helpless in being able to assist? Because it makes us feel better in our situation of life at the moment? In ridding ourselves of E stigma, I don’t think we will ever be able to get the weed by it’s root. This is simply for the same reason that people still take their side glances at those who have more visually understandable disabilities. However, I do believe that we can cut the top of the weed by educating the public about E and all of it’s visual and less visual symptoms.
jan mathews
May 7th, 2010 at 3:43 pm
I drive – but not when im haveing any auras or symptoms. this is the key – do you know yourself well enough. well I had no choice I chose not to drive for 4 years while i was haveing grand mals when the meds had controlled my seizures i was afraid to drive again – but my mom needed me to take her to specialist and dialysis three days a week. I worked thru my fears and became a better driver, more consious of everyone around me – i have had 32 years with no tickets or vilations. im a good driver and if they took that from me i would feel like a shut in like i did when i chose not to drive – the bus made me mad crazy upset and it wasnt worth the suffering
college scholarships
May 8th, 2010 at 4:58 am
Great site. A lot of useful information here. I’m sending it to some friends!
Alysse
May 11th, 2010 at 6:21 am
Jan,
Thanks for your comment! I don’t drive…I haven’t since I was diagnosed in ’03. It’s much too risky, for myself and my 4 1/2 year old daughter. And…it would put far too many people on the road in danger.
I hope you are doing well! Thanks for writing, and reading!!
Bruce
May 19th, 2010 at 1:13 pm
Hi! Haven’t been on this site in some time. Good to get back! I found this article really interesting. Although I live in CA, I went to the Arizona Mayo Clinic before finally finding my best doctors at the Stanford Clinic in CA. The first neuro. I met with upon rising up in the elevator in the Mayo, (even before looking through my file), immediately began telling me I might die from SEDS after I told them I had epilepsy! I’m thinking great…this place is wonderful!…..NOT!!! What a waste of time that was. By the way, I’m still here, and that was 6 years ago. haha!…….Now about the STIGMA. It’s pretty obvious that the media loves large accidental stories, and the public hungers for them, despite any real contained truth or quality. One of my college professors once said that “People will look for pain and death just to feel better. Even the ‘best’ individuals rubber neck when they see it.” That sounded so crazy and I never understood that at the time, but I think I do now. When it comes to a disability, pain, or death, most people, regardless of not wanting to see it, will take a side glance so they can compare, or tell themselves in their conscious or subconscious, “I’m so glad that’s not where I’m at!” The next time you see someone in a wheelchair with an air tube in their throat, a missing leg, or a major disability,….stand at a distance and watch how many people take side glances! As children we are taught not to stare, and as adults, we have seen it all before, so there is no reason to look any longer, yet……still we do! Those who say they don’t aren’t telling the truth! So why is that? Is it because we feel helpless in being able to assist? Because it makes us feel better in our situation of life at the moment? In ridding ourselves of E stigma, I don’t think we will ever be able to get the weed by it’s root. This is simply for the same reason that people still take their side glances at those who have more visually understandable disabilities. However, I do believe that we can cut the top of the weed by educating the public about E and all of it’s visual and less visual symptoms.
Defying the Law…and the Obvious-
November 10th, 2010 at 6:45 am
[...] the safety of him getting behind the wheel again. And this guy has three children. Still, I’m not one to judge. He claims his world would ‘fall apart’ if he hangs up his keys. ‘There are worse [...]