Comments on: Negativity about Epilepsy…is it getting us anywhere? http://www.brainthunders.com/new-posts/negativity-about-epilepsy-is-it-getting-us-anywhere/ Sat, 31 Dec 2011 06:33:12 +0000 hourly 1 http://wordpress.org/?v=3.1.3 By: Jeff Nelson http://www.brainthunders.com/new-posts/negativity-about-epilepsy-is-it-getting-us-anywhere/comment-page-1/#comment-51 Jeff Nelson Tue, 19 Jan 2010 18:15:58 +0000 http://www.brainthunders.com/?p=264#comment-51 Okie dokie! I think the last sentance in the first paragraph of your blog is the most important.....and it does bring a few questions to mind. You state, "How can we push our cause with the people who matter if we can't all be on the same page?" I'm assuming our ultimate 'cause' is to find a cure for E, and the people who 'matter' are doctors, lawyers, and congressmen, etc. I'm sure there are others behind the green drapery, though I think the people I've mentioned would be pulling the strings for us. So, the questions I have in mind are, what are better and more powerful ways of pushing our cause besides making online statements and walking the once a year E walk? How can we put our illness into the mind of the nation so as to rid ourselves of stigmas and get more doctors to look for a cure? Of course we all want a cure, but before there is one, in order to band together, we should define what page we are on, what we want, and what we 'need' people to know about E. Is it a page that says we will write to governers, senators, and congress as a band of E's? If so, that's millions! If not, I don't want to sound negative, but I don't think we'll see much radical change in the healthsystem, or especially people's knowledge of E. Don't mean to sound cliche', but "You say you want a revolution....well you know!" John Lennon Okie dokie! I think the last sentance in the first paragraph of your blog is the most important…..and it does bring a few questions to mind. You state, “How can we push our cause with the people who matter if we can’t all be on the same page?” I’m assuming our ultimate ’cause’ is to find a cure for E, and the people who ‘matter’ are doctors, lawyers, and congressmen, etc. I’m sure there are others behind the green drapery, though I think the people I’ve mentioned would be pulling the strings for us. So, the questions I have in mind are, what are better and more powerful ways of pushing our cause besides making online statements and walking the once a year E walk? How can we put our illness into the mind of the nation so as to rid ourselves of stigmas and get more doctors to look for a cure? Of course we all want a cure, but before there is one, in order to band together, we should define what page we are on, what we want, and what we ‘need’ people to know about E. Is it a page that says we will write to governers, senators, and congress as a band of E’s? If so, that’s millions! If not, I don’t want to sound negative, but I don’t think we’ll see much radical change in the healthsystem, or especially people’s knowledge of E. Don’t mean to sound cliche’, but “You say you want a revolution….well you know!” John Lennon

]]> By: Louise A. http://www.brainthunders.com/new-posts/negativity-about-epilepsy-is-it-getting-us-anywhere/comment-page-1/#comment-50 Louise A. Tue, 19 Jan 2010 16:49:34 +0000 http://www.brainthunders.com/?p=264#comment-50 I feel like most of the conversations I have with people are about how to make life easier and better. The only negatives are when we have been fighting for better health care... we sort of have to tell it like it is. That's my take on it, anyway. Thanks. I feel like most of the conversations I have with people are about how to make life easier and better. The only negatives are when we have been fighting for better health care… we sort of have to tell it like it is. That’s my take on it, anyway. Thanks.

]]> By: Becky F. http://www.brainthunders.com/new-posts/negativity-about-epilepsy-is-it-getting-us-anywhere/comment-page-1/#comment-48 Becky F. Tue, 19 Jan 2010 15:02:29 +0000 http://www.brainthunders.com/?p=264#comment-48 I agree, finding the strength to fight the good fight is pretty hard and to continue it day after day takes it's toll on the strongest! But if we don't try to keep moving forward, we only go back! Only we can change things, we can't leave it to others! Becky I agree, finding the strength to fight the good fight is pretty hard and to continue it day after day takes it’s toll on the strongest!

But if we don’t try to keep moving forward, we only go back!

Only we can change things, we can’t leave it to others!
Becky

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