Some great new resources I must make you aware of on this snowy Monday morning. Another snow day here in metro-Detroit! Thank goodness I only have a Pre-Kindergartner! When do they stop crying when school is closed due to inclement weather?!

Here’s a great article on what causes difficult to control Epilepsy. Many of us are on anti-seizure medications…some of us take multiple drugs. This profiles what it’s like to live with Epilepsy where drugs are not the answer. http://www.epilepsy.org.uk/info/difficult
Love this site!! This is a site specifically designed to train school personnel in seizure rescue. Whether we are talking teachers, school administrators, or even students…if you have someone with Epilepsy in class, it’s a great idea to mark this site. http://www.takechargeteens.org/school%20personnel%20training.html.
http://www.nomoreseizures.org/index.html# This is a website, part of the Epilepsy Foundation, designed to really make you active in your own care. It ‘talks’ about different options like the Ketogenic Diet and the Vagus Nerve Stimulator (something I’m awfully familiar with!). It even suggests you explore talking about surgery with your doctor. It has helpful Q&A about possible depression symptoms, a letter to provide to your pharmacist declaring that you have Epilepsy and more. It’s quite good.
Make sure you take some time to watch this short film…http://www.youtube.com/watch?v=nehY7MdlMUU. http://www.Seizuretracker.comfounders Rob and Lisa Moss have a friend who created this, “Tracking Evan: Caring By the Numbers”. The film portrays the true story of Evan Moss and his battle against Epilepsy and Tuberous Sclerosis (TSC) and how his family turned their hardship into something useful for everyone afflicted with Epilepsy. The film tracks Evan from birth through his brain surgery to remove 3 tubers at the age of four, and his parents who turned their frustration into SeizureTracker.com, an online tool for logging seizures and medications. You can log on and vote (5 stars please!) for the film, the winning films will be shown in Toronto in April at the Neuro Film Festival.
And finally…if you haven’t done it yet, check out http://www.talkaboutit.org/. It’s a fun, lively way to get into Epilepsy awareness. Greg Grunberg (great Epilepsy advocate-his son lived with seizures until he had surgery) leads a crew of celebs in talking about Epilepsy.
Happy shoveling to those who are living in the path of this snowstorm!
Leave a reply