Comments on: Let Story of Accused Doctor be a Lesson for all of us with Epilepsy http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/ Sat, 31 Dec 2011 06:33:12 +0000 hourly 1 http://wordpress.org/?v=3.1.3 By: world news http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/comment-page-1/#comment-10301 world news Tue, 18 Oct 2011 08:20:51 +0000 http://www.brainthunders.com/?p=633#comment-10301 <strong>outlook festival 2011 moat stage...</strong> [...]Let Story of Accused Doctor be a Lesson for all of us with Epilepsy-[...]... outlook festival 2011 moat stage…

[...]Let Story of Accused Doctor be a Lesson for all of us with Epilepsy-[...]…

]]> By: Alysse http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/comment-page-1/#comment-479 Alysse Sat, 10 Jul 2010 12:12:58 +0000 http://www.brainthunders.com/?p=633#comment-479 Tom, Thanks for sharing your story--great point about Grand Mal seizures. I guess most of us never think of the episodes that way. Either way, it's never too late to begin advocacy work! You have much to share with people, both young and old. I hope we stay in touch, and thank you for reading the blog! Alysse Tom,
Thanks for sharing your story–great point about Grand Mal seizures. I guess most of us never think of the episodes that way. Either way, it’s never too late to begin advocacy work! You have much to share with people, both young and old.
I hope we stay in touch, and thank you for reading the blog!
Alysse

]]> By: Tom McElroy http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/comment-page-1/#comment-477 Tom McElroy Sat, 10 Jul 2010 01:41:34 +0000 http://www.brainthunders.com/?p=633#comment-477 I have been strugling with Epilepsy for over 50 years. I had a number of grand mal seizures from when I was 14 until 28. Since then, I am now 65, most of my seizures were petit mall. For the first 20 years my main drug was Dilantin and a little bit of Mycoline. The Dilantin had the side effect of causing my gums to grow. Very bad. When I was about 45 my doctor had me try Tegratol. That drug changed my life. I no longer needed to sleep 15 hours a day. My neurologist died and my new neurologist wanted me two try Depakote. I was on that drug for about one month. The side effects were terrible. I was have problems controlling my arms and at night I couldn't sleep. My doctor wanted me to take more Depakote. No way. I changed doctors that day and went back on Tegratol. I am sorry that I have not been an advocate for Epilepsy. In my mind I want to be treated like everyone else. I never understood why my dad asked me if I wanted to change schools after I had a grand mall in the 11 grade. The nice thing about a grand mall seizure is that you don't see yourself during the seizure. You wake up and realize that something terible has happened but out of sight out of mind. I have been strugling with Epilepsy for over 50 years. I had a number of grand mal seizures from when I was 14 until 28. Since then, I am now 65, most of my seizures were petit mall. For the first 20 years my main drug was Dilantin and a little bit of Mycoline. The Dilantin had the side effect of causing my gums to grow. Very bad. When I was about 45 my doctor had me try Tegratol. That drug changed my life. I no longer needed to sleep 15 hours a day. My neurologist died and my new neurologist wanted me two try Depakote. I was on that drug for about one month. The side effects were terrible. I was have problems controlling my arms and at night I couldn’t sleep. My doctor wanted me to take more Depakote. No way. I changed doctors that day and went back on Tegratol.

I am sorry that I have not been an advocate for Epilepsy. In my mind I want to be treated like everyone else. I never understood why my dad asked me if I wanted to change schools after I had a grand mall in the 11 grade. The nice thing about a grand mall seizure is that you don’t see yourself during the seizure. You wake up and realize that something terible has happened but out of sight out of mind.

]]> By: David Hughes http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/comment-page-1/#comment-469 David Hughes Tue, 06 Jul 2010 02:55:15 +0000 http://www.brainthunders.com/?p=633#comment-469 I definately relate to this story. I did have this happen with two other doctors before the current one who has saved my life. Everyone has the right to do what they can to look for other doctors if they feel they are being mistreated. I definately relate to this story. I did have this happen with two other doctors before the current one who has saved my life. Everyone has the right to do what they can to look for other doctors if they feel they are being mistreated.

]]> By: Jeff Nelson http://www.brainthunders.com/new-posts/let-story-of-accused-doctor-be-a-lesson-for-all-of-us-with-epilepsy/comment-page-1/#comment-395 Jeff Nelson Sun, 20 Jun 2010 16:30:56 +0000 http://www.brainthunders.com/?p=633#comment-395 What I want to know, is how in the world does one diagnose someone with "E" if they don't have it? Wouldn't it be obvious? I mean, don't you have to have seizures in order to be diagnosed? I wasn't diagnosed until after my second Grand Mal and an EEG. My doctor who was a pediatrician, told my folks at that time that some children going through puberty may have a seizure and never have one again, therefore never having to take medication. This story seems to be another good reason why the public needs to be educated about "E" in all of it's ways, (partials, complex partials, absence seizures, Grand Mals, etc.), in order to know what to look for as far as the symptoms go, and of course what to do, who to see, and how to treat it. Seems to me, that like cops, we place so much of our trust with our doctors, only in understanding what is right or wrong in health. However, with a bit of education, we can put those who have their minds on greed rather than their oath of support where they should be......behind the bars!!! What I want to know, is how in the world does one diagnose someone with “E” if they don’t have it? Wouldn’t it be obvious? I mean, don’t you have to have seizures in order to be diagnosed? I wasn’t diagnosed until after my second Grand Mal and an EEG. My doctor who was a pediatrician, told my folks at that time that some children going through puberty may have a seizure and never have one again, therefore never having to take medication.

This story seems to be another good reason why the public needs to be educated about “E” in all of it’s ways, (partials, complex partials, absence seizures, Grand Mals, etc.), in order to know what to look for as far as the symptoms go, and of course what to do, who to see, and how to treat it.

Seems to me, that like cops, we place so much of our trust with our doctors, only in understanding what is right or wrong in health. However, with a bit of education, we can put those who have their minds on greed rather than their oath of support where they should be……behind the bars!!!

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