Comments on: It’s great to chat…but with Epilepsy we must remember we are all different

By: FREDA

FREDA — Mon, 02 May 2011 03:15:44 +0000

LIKE MY DAD I HAVE HAD GRAND-MAL, SLEEP SIEZURES. FOCAL. PARTIAL, AND NOW COMPLEX WHICH HAS MADE ME SICK WITH WORRY. IT TOOK TWO YEARS TO GET MY DRIVERS LICENSE BACK AND IT WAS FAR FROM EASY!!!!!!!!!! THREE DAYS AGO I PARKED IN A WAL-MART I REMEMBER THE SMELL OF BURNNING RUBBER AND LIGHT FLASHING, MY BODY TINGLING. THE NEXT THING I KNOW 3 HOURS HAVE GONE BY AN I AM STANDING ON A MAIN STREET CORNER TWO MILES FROM THE WAL-MART I WAS AT. I WAS VERY TIRED AND DAZED WHEN I CAME HOME MY HUSBAND AKED WHERE I HAD BEEN SINCE I DID NOT KNOW MYSELF I TOLD HIM THE LAST PLACE I REMEBERED A FRIENDS HOUSE. MY HUSBAND HAS BEEN THROUGH JUST AS MUCH HELL AS MYSELF TRING TO COPE AND MAKE SURE I REMAIN SAFE, THE NEXT MORING MY HUSBAND ASKED IF I WAS OK, AND SAID I WAS ACTING A LITTLE OFF. AGAIN I COMPLAINED TO HIM ABOUT THAT BURNING RUBBER SMELL, HE WAS GOING ON A SHORT ERROR. BUT CAME BACK RIGHT AWAY DUE TO WORRY, JUST IN TIME TO FIND ME LEANING AGAINT THE ISLAND IN OUR KITCHEN SOBBING AND HAD URINATED ON THE FLOOR! SINCE THE WALMART ORDEAL i HAVE HAS TWO PARTIAL SIEZURES, MY SON FOUND ME A FEW HOUSES DOWN SITTING ON A LOW WALL IN MY pj’s JUST STARING AND MY HANS MOVING(THIS IS WHAT HE TOLD ME) then my husband found I HAD PUT A BOWEL, SILVERWARE, AND CUP IN MY PURSE! HAVE KNOW IDEA OR MEMORY ON THAT ONE! BUT MY POOR HUSBAND HAS BEEN WONDERING WHY DISHES ETC, HAVE BEEN MIA FOR OVER A LONG PERIOD OF TIME. WHICH BRINGS US BACK TO THE BIG QUESTION WHAT HAPPENED AFTER WAL-MART, I FOUND A RECIEPT IN MY WALENT FOR A TABLECLOTH I NEVER BROUGHT HOME, AND AM TERRIFIED TO THINK OF WHAT I MIGHT OF SAID OR DONE

By: Tabitha

Tabitha — Thu, 01 Jul 2010 19:17:35 +0000

Jeff, if you don’t mind me asking what kind of Epilepsy do you have? I’ve been suffering w/ JME (Juvenile Myoclonic Epilepsy) for about now almost 18yrs.

By: Jeff Nelson

Jeff Nelson — Sun, 24 Jan 2010 17:13:24 +0000

It’s good to hear what others have gone through on some of these sites. Along with being able to offer some support, it makes me feel better to know I’m not the only one who has to handle it. Maybe I like a ‘little’ sympathy I guess. After 20 years of dealing with E, I have seen that it is so true that everyones situation is so different. However, sometimes I feel I know more than the neurologists when they give me a shrug of “well….there is not much more we can do”. Of course I know that’s not the case, and that I can only offer what I have managed with myself. But, I always figure when at an E crossroads, it’s best to do as much research as you can (meaning not from E chat sites), listen closely to your body, mind, and heart……, ‘then’ your nuerologist before making any decisions. I always ask myself. How good is my life now, and how happy am I? Would my life be better if….? And, would I be happier if…..? I sit on these for a time before making decisions. If it’s a ‘maybe’, then I’ll do more research and go to my neurologist. But, it’s true that we must be a bit skeptical. As one of the most famed epileptics (Socrates) said, “Questions are more important than answers.”