Get in the Game…to promote Epilepsy Advocacy

I’ve loved keeping up with this new organization, The Danny Did Foundation. I’ve written about them several times before in other posts. Danny Stanton’s parents had the unthinkable happen to them in December 2009.

They lost their precious son, Danny, to SUDEP, Sudden Unexplained Death in Epilepsy. Now, spreading awareness about Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!

Their newest program or campaign is called Get in the Game to Advocate for Epilepsy Funding.

Here are some facts sent to me by the Foundation:

“Epilepsy, long spoken of in hushed tones, affects over 3 million people in the United States alone, and 50 million people worldwide. This underfunded affliction kills 50,000 people annually in the U.S. —more than the number of people who die from breast cancer every year— yet gets five times less federal funding for research than breast cancer receives.”

I encourage you to click here and send a short letter to your lawmakers to try to encourage them to increase the funding for Epilepsy services and funding. The Stantons make it very simple to download a letter and begin your own push for advocacy!

And again…as the Stantons would say…Danny Did get into the game of life, now we must help others do the same!

Danny

{ 2 comments… read them below or add one }

forex robot June 30, 2010 at 2:37 pm

Wow this is a great resource.. I’m enjoying it.. good article

muriu kariuki August 8, 2011 at 11:59 am

are there a way one can get funds to develop a documentary on epilepsy. i am currently shooting one in kenya.

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