I just can’t help it. I don’t know if it’s the wimp in me, or maybe I’m just simply puzzled by the boldness? I heard a story this week…about someone who was diagnosed with Epilepsy several years ago, has recurring seizures, and continues to drive. In fact, he drove himself right into a major accident this past summer, flipping his car. He survived, thankfully, and he didn’t hit anyone on the road, nor was anyone in the car with him. But he’s just not ready to give up driving.

Courtesy: flickr
“I can feel them coming, usually,” he said to me when I questioned the safety of him getting behind the wheel again. And this guy has three children. Still, I’m not one to judge. He claims his world would ‘fall apart’ if he hangs up his keys. ‘There are worse drivers out there than me,’ he told me. That was the line that stuck in my mind.
I’m not a fool, trust me…I know first-hand how life can be such a drag when you can’t drive. There are days when I force myself to take pride in the fact that I have given up my car due to my illness, realizing the safety issues for me, those I love and everyone else on the road. But, many days, it irritates the hell out of me! I’ve spent more hours waiting to be picked up or dropped off, either by my husband, mother, babysitter or friends who help me out. I always use this line: “Oh, I don’t mind waiting…I have so much I can do from reading my book, to checking my email on my blackberry. So, don’t worry, I’m fine!”
Do you know how much ice cream has melted in my shopping bag while waiting for Andrew and Hayden to ‘run to the car wash’ while I do my grocery shopping on a Saturday morning? Then, the car wash trip turns into a trip to the bookstore and the hardware store…”We thought you could use the extra time!” They say when they pull up and get a glimpse of my scowl!
Those of us who live in cities with crummy public transportation (I do still love you, Detroit), are especially challenged. I think it might take me about 90 minutes if I want to travel downtown for a meeting or a trip to a museum. But, I just can’t seem to get the image of someone with epilepsy, defying the law. It’s downright hurtful to those of us who abide by the rules.
The fact of the matter is, every state has a law that applies to drivers who have seizures. It’s up to our doctors to make sure we are abiding those laws, but it’s also up to those of us who live with Epilepsy to adhere to them. I asked a simple question on Facebook, I wanted to get people’s opinion on driving when you have seizures. There’s quite a difference of opinions. (My thanks to everyone who wrote on the wall)

“If you have ANY uncontrolled seizures you have NO business behind a wheel of an automobile period, no more than a person who is visually impaired. Use public transportation unless or until the seizures are controlled.”
“Just because you have seizures, doesn’t mean you never drive again, that’s living in fear. Someone who has had a heart attack drives again once they are stable. Yet, once you have a heart attack, you are likely to have another. Should that person never drive again in fear of having a heat attack while they drive?”
Obviously, it’s up to you, but is it worth risking your life and the lives of those around you?
Meg J
November 10th, 2010 at 6:58 am
I know it has been hard for me to give up my keys. I still have my car parked out front as I’m unwilling to sell it. It’s the last piece of freedom I have, in theory and to sell it seems like I’m giving up. Like I’m saying I’ll never get better. I don’t drive, I haven’t driven in quite awhile and that’s mostly because I couldn’t stand the idea of hurting someone else. One slip and someone else could die. My freedom just isn’t worth it.
So for now, I’ll walk, ride my bike or get someone else to drive me. I can’t lie, however, it’s been one of the hardest things in my life to give up.
Driving « Meg's Blog
November 10th, 2010 at 7:13 am
[...] read a post recently that got me thinking about driving, and so here I am blogging about it… Go [...]
eileen warren
November 10th, 2010 at 7:26 am
I gave up my keys about 17 years ago, after a crash. I convinced myself that I could feel the auras coming and had time to pull over (on a major interstate going 65mph, in heavy traffic…right). My Doctors told me to stop. I had to get to work, right? Kids had activities, had to go to the gym and stay fit, groceries, all the necessities of daily life. Well, at least until the “wake-up call” . No one was hurt and the accident only involved me. But what if my child was in the car? What if I hit someone else, an innocent victim? I immediately gave up the keys. Later, it made me angry to hear my elderly mother complain when her vision went that she had to stop driving. ” What? You’re in your 80s and drove for all these years! For you it’s not even necessary! I need to drive to get groceries and go to work!” Eventually I got over it. It’s still hard but guess what, others with disabilities manage their entire lives without keys. Yes, it’s still frustrating but I know I have made the only decision I could. Stop being selfish, people! DON’T DRIVE if you have any uncontrolled siezures. At the least, follow the law. There are alternatives. Call a friend & offer to pay for gas, use your feet or the bike, take a bus or a train for a visit to the city, seek help from a local advocacy group, there are retirees in some communities who volunteer their time to drive for people who cannot. Pay the baby sitter an extra few bucks for the trip to the mall; She’ll love you! The point is there are alternatives. USE THEM!
Alyssa S.
November 10th, 2010 at 8:08 am
I don’t get any sort of warning/aura before a seizure, I just wake up afterwards & someone tells me what happened…or I figure it out based on the incredible soreness of my muscles, the foggy thinking & the pounding headache. I haven’t been able to drive for over a year because every time I’ve gotten close to the 3-month “clearance” mark, or just past it, I have another seizure. I’m actually just a few days past it now, so I’m pretty much expecting to have one within the next week or so. It’s extremely frustrating to not be able to go to the grocery store, take my kids to the park, or just get out of the house by myself once in a while. We live in a more rural area & don’t have public transportation at all, so I have to rely on my husband & the occasional friend to take me where I need to go. However, I would NEVER drive at this point-even though technically I’m a few days past the point where my state says I can. My doctor & I have discussed it and have come to the decision that I should wait a little longer…it’s not worth my life, the lives of my family, or the other people on the road.
Jeff Nelson
November 10th, 2010 at 10:56 am
Give up the keys E’s! I gave up mine, and who knows how many lives I probably have saved?! One thing I know is that in most towns bus’s are there to help, and there are also other ways of transportation, especially for those who have disability. They will come get you! We can’t always rely on our doctors to abide by the laws of our states. Before giving up my keys, I did at one time have a drivers license and my doctors never mentioned anything about it! Maybe they have too much on their hands already, but it seems to me that we have to be the ones to make sure we are making the right decisions. I have to admit, that I did drive for a while to get through college, relying on my aura’s to help me know when to pull over etc. But, that doesn’t always work when you’re going 80 mhr. on a highway! After a small accident that damaged my car (not due to a seizure), I finally decided I should stop being an idiot and make the right decisions rather than get somebody hurt or killed in an accident. I can live with E, but I don’t think I could live with that on my mind!
Greg Gardner
November 10th, 2010 at 4:59 pm
While not controlled, all of my seizures happen while I sleep, so I don’t feel any problem with taking the wheel if I happen to need to. Living in NY, I haven’t had many occassions to drive either. My doctor feels this is my choice, and I don’t know that as things are now, I would change anything. He is also not required to report anything. New York would take away my license if I have a “loss of consciousness” within the last year, but again, I’m already asleep. My hometown of DC is ok with eplieptics driving if there are only nocturnal seizures.
That said, I have in the past had two seizures while awake. One was 7 years ago, the other 27.
Do you or others feel (I am curious on opinions) that this scenario warrants my relinquishing the keys?
Angela Stansell
November 10th, 2010 at 6:25 pm
I asked my husband to give up his keys and reluctantly he did it. This was after an accident last Thanksgiving in which he would have hit a house had 2 cars and a tree not slowed him down. He’s been very gracious about it, though I know he hates it. He does it because he loves me.
Sherry D
November 21st, 2010 at 12:58 pm
I haven’t been driving for over 20 years. I ride my bike and thats the most I do.
I know it’s hard! I know you don’t want to…I know you don’t to like someone to give you a ride. I still to this day hate to ask my husband to take me someware. But you’re letting Epilepsy kill you and someone else or a child if you drive and you’re still having seizures! And saying there’s other people out there worse than me is just a cope out! Think about it!