Comments on: A dream…more ‘Star-Power’ to help fight the fight against Epilepsy

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[...]A dream…more ‘Star-Power’ to help fight the fight against Epilepsy-[...]…

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By: Bias and Stigma…How to Move Forward with Epilepsy Awareness-

Bias and Stigma…How to Move Forward with Epilepsy Awareness- — Thu, 28 Oct 2010 13:27:15 +0000

[...] So often we pay more attention to the negative aspects of our world; Why don’t we have more celebrities in our corner to speak about Epilepsy? Why isn’t there more federal funding for research? Why [...]

By: Alysse

Alysse — Sun, 01 Aug 2010 12:17:52 +0000

Thanks so much Mary Ellen…I will send you an email so we can connect!

By: Mary Ellen Ciganovich

Mary Ellen Ciganovich — Sun, 01 Aug 2010 00:56:45 +0000

I am a motivational speaker who has epilepsy. I was diagnosed at the age of 6. I am now 58! So I was diagnosed in 1958 when epilepsy was REALLY NOT spoken about. I speak to groups about epilepsy all the time as I also speak to groups about Multiple Sclerosis since I was diagnosed with that in 1986 at the age of about 38. I taught middle school for over 15 years and to look at me you would think I am one of the healthiest people on the planet. That is why I like to speak to groups about epilepsy – what it is and what it is NOT. You may contact me through my email address at mec222@aol.com or you amy call 423-653-6446.
Thanks,
Mary Ellen Ciganovich
Chattanooga,TN 37363

By: The Efforts of the Young will Bring Epilepsy out of the Shadows…-

The Efforts of the Young will Bring Epilepsy out of the Shadows…- — Sat, 24 Jul 2010 13:26:17 +0000

[...] Greg Grunberg has done an excellent job of pushing the issue, as have organizations like the Epilepsy Foundation of America, its affiliates, CURE, The Danny Did Foundation. But really…is it so tough to be frank about this? Apparently, yes. [...]

By: Olivia Murphy

Olivia Murphy — Fri, 19 Mar 2010 01:08:04 +0000

I have been living wit epilepsy since the age of 10. Its been kind of hard but i was able to get my license in Cosmetology and a Associates Degree in Culinary Arts. Still I am left with a feeling of what should I do since both of my careers are out in the open and not behind closed doors. No matter where I try to place myself I cant seem to choose the right career. I love arts and crafts i can draw portraits,watercolor,pastels,knit,mosaic art. I just seem to scared to step towards my careers that I was once so motivated to achieve. I feel confused and afraid thats what been happening to me in my life of Epilepsy. What should I do?

By: Jeff Nelson

Jeff Nelson — Mon, 04 Jan 2010 18:29:02 +0000

Yes, I hope they step out of the darkness! We do need the support. I was amazed when I first googled in ‘famous people with epilepsy’ and found just how many there were or have been, and what extraordinary names came up. A while back I read a book about Temporal Lobe Epilepsy called ‘Seized’ by Eve LaPlante that discussed, among other things, how epilepsy may or can contribute to a highly artistic, literary, or musical mentality. There are even names that neurologists and phycologists have given to the passion an epileptic may feel in the need to create large amounts of artwork, music, or writings. These are the kind of passions that aren’t ordinary, but are extraordinary. Not a want, but a feeling of need. These feelings may be due to the number of siezures one is having and where they are located as they effect that section of the mind. If I remember correctly, LaPlante mentioned in her book ‘Siezed’ that if a person contains any talent and are subjected to these passions, then if the timing and place is right, they may fall within the cattagory of those who have changed our view of the world. As an artist, B.A. Art Historian, (and epileptic) who is definately a fan of Van Gogh, I was interested to read that Gogh had created over 2000 paintings in only 6 years with little schooling and did so well. What interested me more, was that in just one year of 08′ before I read ‘Siezed’, I had created over 100 paintings, many still life, many realistic portraits, and some of which were 6′ X 4′ large, though definately not abstract! I had litterally locked myself in my studio up to ten hours a day, living on coffee. I know….bad! But, my point is, is that I didn’t really want to, I felt I had too! So maybe LaPlante has something going there. I will always do what I do because I love it regardless of any success, and I don’t plan on cutting off my ear! However, until there is a cure for epilepsy, I’m going to keep looking at my daily visions as a gift rather than a terrible problem; because despite all of the challenges I face each day, it seems that there may be some bit of an upside to having epilepsy.