If you’re like me, when it comes to your illness–in this case Epilepsy, if it’s time to try something new, whether it’s an anti-seizure medication, a test, a new doctor, treatment center or alternative therapy, the research floodgates are opened. My computer becomes my best friend.

“Pick a passion.” That was the advice of a great neurologist I began seeing in Baltimore at Johns Hopkins several years ago. After looking over my medical records and my overall situation, he told me that it was likely my cognitive skills would suffer, my memory would be damaged and everything I had learned about [...]

If you’re like me, you’re always wondering not only how can you help yourself through this disease we call Epilepsy, but how can you help others?

If you’re like me, you are so hungry to learn more about your Epilepsy. I can’t get enough data; online, in books, at conferences, from my doctors. In my more than seven years living with this disease, I’ve realized that not only do I gobble up information from my doctors and those various resources, but I’m taught by others who [...]

First…my apologies for skipping out on you for the last two days! I was under the weather…I mean REALLY under the weather. I don’t think I can ever recall feeling that sick. Call it the 24-hour flu bug, Montezuma’s revenge, my girlfriend Robin thinks I shake too many hands and caught some major germs, my husband thinks [...]

Alternative therapies for Epilepsy…the question is: do they work and are they truly safe? And, most important, is there an alternative therapy that is right for you?

I received an email yesterday from a lovely woman who began reading my blog last week (I’m grateful I am beginning to attract an audience)! She explained to me, in detail, that she has had Epilepsy since childhood, and she is what doctors call, “Drug-Resistant”. In other words, her anti-seizure medications just don’t work. Some [...]

In 2006, I entered a 6 month trial at Johns Hopkins in which I followed the Ketogenic Diet, a carefully calculated diet, high in fat, low in protein, and virtually carbohydrate-free which is used for the treatment of difficult-to-control seizures in children. We are talking 15 grams of carbs a day…that’s about 1/2 a slice of bread! Everything had to be recorded and journal-ed…we visited the docs at least twice a month, if not more often.