I live in constant fear of when the next seizure will strike; where I’ll be when it does strike and who will be with me. I’m not always public with my fears, but they are incredibly distracting and controlling. Many times, it’s so easy to keep them bottled up.
Having the courage to identify yourself with not just the negative, but mainly the positive is a gift. And, it’s something I’ve worked hard to achieve. I’m determined to not be labeled…
In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
When exactly do you tell a child about his or her epilepsy and everything that comes along with it? Granted he knows when he’s not feeling well, but as a young child, can he understand what it is that’s making him sick?
Memory issues with Epilepsy absolutely stink!
Paulette George is a wife, mother and author. She penned the book, Good Morning Beautiful, about her daughter Christina’s journey with Epilepsy and Autism. Suffering more than 100 seizures each day, Paulette and her husband eventually discovered the Ketogenic Diet and they began implementing the diet for Christina. Brainthunders spoke to her.
Tucket was Andrew’s dog, through and through, but in January 2003, when I became sick and began this journey called Epilepsy, Tucket really became ‘my’ dog. We always marveled at how he could sense seizures. He was not trained to be a seizure alert dog, but he has this amazing quality. He climbs into my lap when my auras begin, sometimes even tugging at my clothes so I know to sit down on a piece of furniture if I’m standing.
As for my child, I pride myself on the fact that she has just as normal a life as her friends and classmates, and I work very hard at this. Does her mother have seizures? Yes, but she is cognizant of that and she knows how to react. I surround myself with people who understand and care, from my husband to my very, very close friends. So, I never worry that she is deprived of love and attention.
A neurologist in Detroit is accused of misdiagnosing hundreds of children…telling them they had Epilepsy. It turns out, they don’t. He prescribed medication for virtually all of them, brutal and terrifying anti-seizure medications.
Regarding the aolhealth.com post last week, I heard from SO many readers, both new and old…and your compliments were very encouraging, not to mention, welcome! I also received lots of advice, questions and words of encouragement. It’s why I’m doing what I’m doing with this blog!