We as epilepsy advocates can’t be discouraged when we don’t get the help or the support we want. We have to work for it, and work hard. NOT EVERYONE UNDERSTANDS EPILEPSY OR EVEN KNOWS WHAT IT IS! So, it’s our job to teach them what the needs are and what programs are available.

My group is tight-knit, and I have friends who have known me throughout this journey with Epilepsy and those who knew me long before seizures became part of my everyday life.

You all…or WE…should be very proud of our efforts to promote Epilepsy awareness. And, I know it’s not over yet. As someone who is always watching the process, I have to wonder: how successful have we been in moving the needle?

In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.

So much of what we talk about when it comes to Epilepsy advocacy and awareness centers around erasing the stigma of living life with seizures. Collectively, we wonder over and over…why don’t we, as people who live with Epilepsy or care for someone living with Epilepsy, receive attention…attention we think we deserve?