We as epilepsy advocates can’t be discouraged when we don’t get the help or the support we want. We have to work for it, and work hard. NOT EVERYONE UNDERSTANDS EPILEPSY OR EVEN KNOWS WHAT IT IS! So, it’s our job to teach them what the needs are and what programs are available.
I was thinking this morning, are there some realistic New Year’s resolutions that I actually might adhere to? And, can I make sure they not only benefit and define me, but are also epilepsy issues I care so deeply about?
Having the courage to identify yourself with not just the negative, but mainly the positive is a gift. And, it’s something I’ve worked hard to achieve. I’m determined to not be labeled…
You all…or WE…should be very proud of our efforts to promote Epilepsy awareness. And, I know it’s not over yet. As someone who is always watching the process, I have to wonder: how successful have we been in moving the needle?
In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
So here we are…National Epilepsy Awareness Month; 30 days in which we have a platform to push our message of hope, support and advocacy.
It’s one of my favorite evenings…the Epilepsy Foundation of Michigan’s Flame of Hope Awards. My family and I attended the event on Thursday evening, and as I expected, it was just as moving and inspirational as I expected it to be.
It seems as if there are SO many organizations, benefits, foundations that center on Epilepsy, cropping up all around the web. And, if you’re like me, everything has a certain appeal. So, how do you choose?