Regarding the aolhealth.com post last week, I heard from SO many readers, both new and old…and your compliments were very encouraging, not to mention, welcome! I also received lots of advice, questions and words of encouragement. It’s why I’m doing what I’m doing with this blog!

Epilepsy advocates come in many different varieties. They can be those of us who live with Epilepsy, family members or good friends of those with Epilepsy, doctors and others in the medical field who deal each day with Epilepsy…or simply people who understand this complex world, and care.

When I began writing about living with Epilepsy, I decided I wanted to tell both my story and the stories of others, those who live with the disease and those who are connected to those who live with it.

Speaking up and speaking out CAN help. With 3 million people in the U.S. living with Epilepsy and nearly 50 million people around the world, we can stand up and be noticed!

Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!

The Epilepsy Community must united and help bring Epilepsy “out of the shadows.”

Perhaps one of the greatest mysteries surrounding Epilepsy and seizures is SUDEP or Sudden Unexplained Death in Epilepsy. There is no known cause and like Epilepsy itself, no cure.