This is a fantastic video!! Produced by the Epilepsy Foundation of Colorado, it follows the ‘Talk About It’ theme. It’s especially poignant when the kids in the piece emphasize that those of us with Epilepsy are ‘just like everyone else’–and should be treated like all of the other kids. If you have a chance, pass this [...]
As you dive deep into a certain illness and you begin to participate in fundraising, it seems like the more you do for the cause, the more you want to understand where the money will go.
What exactly defines an Epilepsy Advocate?
If you’re like me, you are so hungry to learn more about your Epilepsy. I can’t get enough data; online, in books, at conferences, from my doctors. In my more than seven years living with this disease, I’ve realized that not only do I gobble up information from my doctors and those various resources, but I’m taught by others who [...]
In the Epilepsy community, there are a few e-communities or chat rooms that are either popular or gaining some great interest by those who live in the Epilepsy world.
I truly think you have to be a bit skeptical and careful about everything you hear and read in some of these chat rooms.
It’s a new year, perhaps it’s time to shed the negativity when it comes to Epilepsy and band together to fight the fight.
I’ve gone months and months…and months without a grand mal seizure, until this weekend.
Alternative therapies for Epilepsy…the question is: do they work and are they truly safe? And, most important, is there an alternative therapy that is right for you?
Someday, it won’t just be ordinary people like you and me who step forward and admit they have Epilepsy. It will be famous people who ‘step out of the darkness’.
When she was an infant, it didn’t really matter which one of us was the sick one. But now that my daugther is growing up, I’m beginning to feel that sense of guilt. Is my illness bringing her down?
Recent Comments