The best advice a neurologist once gave me, and words I have never forgotten, was to make sure you appoint someone your personal advocate or your Partner in Care as you journey through epilepsy.

In 2006, I entered a 6 month trial at Johns Hopkins in which I followed the Ketogenic Diet, a carefully calculated diet, high in fat, low in protein, and virtually carbohydrate-free which is used for the treatment of difficult-to-control seizures in children. We are talking 15 grams of carbs a day…that’s about 1/2 a slice of bread! Everything had to be recorded and journal-ed…we visited the docs at least twice a month, if not more often.