I was contacted a couple of weeks ago by a writer for aolhealth.com. As I always say…any and all times we have the opportunity to talk about Epilepsy, it’s a good thing!
Epilepsy Advocate and Healthy Women have launched a new campaign to focus on women living with Epilepsy.
When I began writing about living with Epilepsy, I decided I wanted to tell both my story and the stories of others, those who live with the disease and those who are connected to those who live with it.
An aura is described as ‘a distinctive feeling or some other warning sign when a seizure is coming’. For those of us who have auras, they can be so different, and that’s both good and bad.
We never conceal my Epilepsy from our daughter. As she grows, I haven’t been quiet about the fact that other parents are not in agreement with this approach. But, as I’ve said, it’s the way we have chosen to tackle parenting when one parent lives with a chronic disease.
I had the most amazing experience Tuesday. It was something I had on my ‘to-do’ list for some time now. I visited Camp Discovery, the Epilepsy Foundation of Michigan’s 5 day-4 night summer camp for kids with Epilepsy.
An Oakwood Hospital (Michigan) pediatric neurologist has allegedly been diagnosing children, hundreds of them, with Epilepsy…FOR CASH. And these kids do not have Epilepsy.
‘The Doctors’ gave us a great opportunity to explore the option of the Vagus Nerve Stimulator (VNS).
The more we talk, the more people will learn. Advocacy and support is so crucial if we want to erase the stigma and inform those who don’t know a thing about Epilepsy.
Medication Switching…in other words, you take your prescription to the pharmacy and the pharmacist fills it with a generic anti-epileptic medication instead of the name brand, has become such a crucial issue for the Epilepsy Community.
Recent Comments