In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
The fact of the matter is, every state has a law that applies to drivers who have seizures. It’s up to our doctors to make sure we are abiding those laws, but it’s also up to those of us who live with Epilepsy to adhere to them.
So here we are…National Epilepsy Awareness Month; 30 days in which we have a platform to push our message of hope, support and advocacy.
So much of what we talk about when it comes to Epilepsy advocacy and awareness centers around erasing the stigma of living life with seizures. Collectively, we wonder over and over…why don’t we, as people who live with Epilepsy or care for someone living with Epilepsy, receive attention…attention we think we deserve?
Call it a side effect of living with Epilepsy, or call it a behavioral disorder. I admit, I begin to lose it if we don’t have a 6 month supply of toilet paper in the house.
It’s been an absolutely crazy couple of weeks. Andrew is always, always begging me to limit my stress and how much I take on, but I think this week put me over the top!
When exactly do you tell a child about his or her epilepsy and everything that comes along with it? Granted he knows when he’s not feeling well, but as a young child, can he understand what it is that’s making him sick?
Memory loss and Epilepsy: It’s heart-wrenching and completely uncomfortable to be somewhere, in a group of people, and so many of them look familiar, but you just can’t seem to remember how or why.
The new movie, Secretariat, is inspiring and motivating. It has a lot to do with living life with Epilepsy!
It’s one of my favorite evenings…the Epilepsy Foundation of Michigan’s Flame of Hope Awards. My family and I attended the event on Thursday evening, and as I expected, it was just as moving and inspirational as I expected it to be.
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