Why won’t people talk about Epilepsy? Once they hear about the diagnosis, if they find out you might be on course for a major brain surgery…why do they all of a sudden tune you out?

…a few great Epilepsy resource links on this Monday morning.

Medical dramas get it ‘wrong’ much of the time when it comes to seizure first-aid.

HAPPY VALENTINE’S DAY! Admittedly, I have never been a huge fan of this so-called-holiday. Too much candy, I never know if I should or shouldn’t buy gifts for my close family and friends-and then there’s my husband. We are just coming off of the holidays. Do we really need to exchange gifts? I’ve always thought [...]

This is a fantastic video!! Produced by the Epilepsy Foundation of Colorado, it follows the ‘Talk About It’ theme. It’s especially poignant when the kids in the piece emphasize that those of us with Epilepsy are ‘just like everyone else’–and should be treated like all of the other kids. If you have a chance, pass this [...]

Talk about aggravating, and actually…downright hurtful. One of my husband’s favorite sitcoms is Two And A Half Men, now in syndication on a variety of networks. For reasons I will never figure out (call it a guy thing), Andrew loves this show!  A few nights ago, we had a great dinner at home, I was cleaning up [...]

As you dive deep into a certain illness and you begin to participate in fundraising, it seems like the more you do for the cause, the more you want to understand where the money will go.

If you’re like me, you are so hungry to learn more about your Epilepsy. I can’t get enough data; online, in books, at conferences, from my doctors. In my more than seven years living with this disease, I’ve realized that not only do I gobble up information from my doctors and those various resources, but I’m taught by others who [...]

In the Epilepsy community, there are a few e-communities or chat rooms that are either popular or gaining some great interest by those who live in the Epilepsy world.
I truly think you have to be a bit skeptical and careful about everything you hear and read in some of these chat rooms.

First…my apologies for skipping out on you for the last two days! I was under the weather…I mean REALLY under the weather. I don’t think I can ever recall feeling that sick. Call it the 24-hour flu bug, Montezuma’s revenge, my girlfriend Robin thinks I shake too many hands and caught some major germs, my husband thinks [...]