Epilepsy is one of those illnesses that sort of has tentacles. If you are suffering, you tend to bring others down with you, whether it’s with their concern or their care; but, only the ones who deeply care and want to, or already do understand the condition.
We never conceal my Epilepsy from our daughter. As she grows, I haven’t been quiet about the fact that other parents are not in agreement with this approach. But, as I’ve said, it’s the way we have chosen to tackle parenting when one parent lives with a chronic disease.
I had the most amazing experience Tuesday. It was something I had on my ‘to-do’ list for some time now. I visited Camp Discovery, the Epilepsy Foundation of Michigan’s 5 day-4 night summer camp for kids with Epilepsy.
Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!
An Oakwood Hospital (Michigan) pediatric neurologist has allegedly been diagnosing children, hundreds of them, with Epilepsy…FOR CASH. And these kids do not have Epilepsy.
Living with Epilepsy is featured in an upcoming episode of Health Corner on Lifetime.
You can live a ‘normal’ life with Epilepsy.
The more conversations we have about Epilepsy and seizures and the more realities we share, the more we raise awareness. If you’re like me and have seizures, I learned so much from others and their seizures.
An interview with Dr Brien Smith of Henry Ford Hospital and Greg Grunberg, Epilepsy Advocate…on what’s new and important in the Epilepsy world
A film aired last evening on PBS, Through the a Dog’s Eyes, which profiles Canine Assistants. They provide service dogs to those in need, including some people with Epilepsy.
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