My group is tight-knit, and I have friends who have known me throughout this journey with Epilepsy and those who knew me long before seizures became part of my everyday life.
Being a caregiver, whether you are talking about Epilepsy or anything else, is one of the toughest jobs on the planet. Really.
I live in constant fear of when the next seizure will strike; where I’ll be when it does strike and who will be with me. I’m not always public with my fears, but they are incredibly distracting and controlling. Many times, it’s so easy to keep them bottled up.
Having the courage to identify yourself with not just the negative, but mainly the positive is a gift. And, it’s something I’ve worked hard to achieve. I’m determined to not be labeled…
In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
So here we are…National Epilepsy Awareness Month; 30 days in which we have a platform to push our message of hope, support and advocacy.
It’s been an absolutely crazy couple of weeks. Andrew is always, always begging me to limit my stress and how much I take on, but I think this week put me over the top!
When exactly do you tell a child about his or her epilepsy and everything that comes along with it? Granted he knows when he’s not feeling well, but as a young child, can he understand what it is that’s making him sick?
CHEERS to the Epilepsy Foundation of Florida for partnering with a woman named Brenda Bartlett, and their collective effort to give away tens-of-thousands of bicycle helmets in the state of Florida.
A high school football player in Texas collapsed and died Saturday, reportedly after suffering a seizure. He was the star quarterback, had just thrown his second touchdown of the game, was an A student, and had a history of seizures.