Why don’t more people ‘Talk about It’? In other words, why is it so difficult to speak freely and honestly about Epilepsy and seizures?
Epilepsy Advocate and Healthy Women have launched a new campaign to focus on women living with Epilepsy.
Epilepsy advocates come in many different varieties. They can be those of us who live with Epilepsy, family members or good friends of those with Epilepsy, doctors and others in the medical field who deal each day with Epilepsy…or simply people who understand this complex world, and care.
This is an open question for all of you with college-aged kids, or kids who are approaching college-age. What are your options? Have you consulted with your neurologist(s) regarding this question? Do you know of any universities or small private colleges with programs?
Epilepsy is one of those illnesses that sort of has tentacles. If you are suffering, you tend to bring others down with you, whether it’s with their concern or their care; but, only the ones who deeply care and want to, or already do understand the condition.
We never conceal my Epilepsy from our daughter. As she grows, I haven’t been quiet about the fact that other parents are not in agreement with this approach. But, as I’ve said, it’s the way we have chosen to tackle parenting when one parent lives with a chronic disease.
I had the most amazing experience Tuesday. It was something I had on my ‘to-do’ list for some time now. I visited Camp Discovery, the Epilepsy Foundation of Michigan’s 5 day-4 night summer camp for kids with Epilepsy.
Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!
An Oakwood Hospital (Michigan) pediatric neurologist has allegedly been diagnosing children, hundreds of them, with Epilepsy…FOR CASH. And these kids do not have Epilepsy.
Living with Epilepsy is featured in an upcoming episode of Health Corner on Lifetime.
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