We as epilepsy advocates can’t be discouraged when we don’t get the help or the support we want. We have to work for it, and work hard. NOT EVERYONE UNDERSTANDS EPILEPSY OR EVEN KNOWS WHAT IT IS! So, it’s our job to teach them what the needs are and what programs are available.
My group is tight-knit, and I have friends who have known me throughout this journey with Epilepsy and those who knew me long before seizures became part of my everyday life.
Memory loss due to my seizures is something I know I will always struggle with, and the fact that it will most likely worsen is quite daunting, but I’m thankful for my close friends and family who can tolerate and console me.
Memory issues with Epilepsy absolutely stink!
Still, with weekly, and most of the time daily seizures…it’s pretty special when you can lose yourself in something, with someone, and for the moment you don’t have to think about ‘the E word’.