Perhaps one of the greatest mysteries surrounding Epilepsy and seizures is SUDEP or Sudden Unexplained Death in Epilepsy. There is no known cause and like Epilepsy itself, no cure.

This is a big week in the Epilepsy World…at least for those who would like to show support for the changes that could come with greater funds for research. Wear Purple on Friday, March 26th to show your support for more Epilepsy research.

How can you help those who will be diagnosed with Epilepsy just this year? Statistics show 200,000 people will be diagnosed in 2010. Those of us who live with the disease each day know what we are dealing with…but how about those ‘newbies’ to this life?

If you’re like me, when it comes to your illness–in this case Epilepsy, if it’s time to try something new, whether it’s an anti-seizure medication, a test, a new doctor, treatment center or alternative therapy, the research floodgates are opened. My computer becomes my best friend.

As someone living with Epilepsy, I never truly understood what connection meant or how much it could do in terms of outreach and support until I experienced it.

…a few great Epilepsy resource links on this Monday morning.

A couple of ‘To-Do’s’ on this Thursday! I love a good To-Do list. Just ask Andrew, my husband. If you could only see my desk!! Check out this website,  http://www.goupstate.com/article/20100210/NEWS/100219935/1088/sports?p=1&tc=pg and vote for Stanley Hunter, the former Clemson linebacker who is now in coaching. He’s been nominated for an award that will allow him to travel to colleges [...]

What exactly defines an Epilepsy Advocate?

If you’re like me, you are so hungry to learn more about your Epilepsy. I can’t get enough data; online, in books, at conferences, from my doctors. In my more than seven years living with this disease, I’ve realized that not only do I gobble up information from my doctors and those various resources, but I’m taught by others who [...]