You all…or WE…should be very proud of our efforts to promote Epilepsy awareness. And, I know it’s not over yet. As someone who is always watching the process, I have to wonder: how successful have we been in moving the needle?
Speaking up and speaking out CAN help. With 3 million people in the U.S. living with Epilepsy and nearly 50 million people around the world, we can stand up and be noticed!
I was told that one of my daughter’s friends will not be able to come over to our house for a play date because of my ‘situation’ as it was termed. The mother does not want to expose her child to ‘anything scary’, i.e. a seizure.
Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!
The overall goal of tracking seizures is to find a pattern, the seizure triggers and the length and severity of seizures to make sure you are being treated properly.
If you are the parent of a child with Epilepsy, there’s great opportunity for you to experience summer programs all around the country. How about camp?
For those of you around the world, if you’ve never participated in a gathering or fundraiser for your local Epilepsy Foundation, I highly suggest it! It’s very easy to do, and not only will your Epilepsy Foundation benefit, but you stand to gain so much!
A film done to honor Evan Moss and his life with Epilepsy, just won the top prize at the Neuro Film fest and the Fan Favorite Award.
So often, we all get wrapped up in communicating through social media outlets and spreading the word about Epilepsy via chatrooms. Are we caught up on the news about the disease?
Once you get the ‘NO’ on surgery and you’ve experimented with multiple meds, is there anything left that will help you take back your life from a life of seizures?