Epilepsy organizations-

2011 Summer Stroll for Epilepsy Season…in the Books!

June 27 , 2011 | Posted by Alysse | In: Being a Parent with Epilepsy, Epilepsy Advocates, Epilepsy Causes, Epilepsy Community, Epilepsy organizations, Family, Living with Epilepsy, New Posts

Thanks to the Epilepsy Foundation of Michigan for a wonderful Summer Stroll season!

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Tags: epilepsy, epilepsy advocacy, Epilepsy advocate, epilepsy awareness

Donation Envy…What’s In It for Us?

June 1 , 2011 | Posted by Alysse | In: Epilepsy Advocates, Epilepsy Causes, Epilepsy Community, Epilepsy organizations, Family, Friendships and Epilepsy, Living with Epilepsy, New Posts, Supporting Epilepsy Programs, Talking About Epilepsy, The Stigma of Epilepsy

We as epilepsy advocates can’t be discouraged when we don’t get the help or the support we want. We have to work for it, and work hard. NOT EVERYONE UNDERSTANDS EPILEPSY OR EVEN KNOWS WHAT IT IS! So, it’s our job to teach them what the needs are and what programs are available.

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Tags: epilepsy, epilepsy advocacy, Epilepsy advocates, epilepsy awareness

Wrestling with Ignorance…or Understanding the Choices Others Make?

November 21 , 2010 | Posted by Alysse | In: Being a Parent with Epilepsy, Epilepsy Advocates, Epilepsy and Facebook, Epilepsy Causes, Epilepsy Community, Epilepsy organizations, Epilepsy Websites, Living with Epilepsy, New Posts, Purple for Epilepsy, Supporting Epilepsy Programs, Talking About Epilepsy, The Stigma of Epilepsy

You all…or WE…should be very proud of our efforts to promote Epilepsy awareness. And, I know it’s not over yet. As someone who is always watching the process, I have to wonder: how successful have we been in moving the needle?

It’s November. So How Can We Spread the Word and Unite?

November 4 , 2010 | Posted by Alysse | In: Being a Parent with Epilepsy, Epilepsy Advocates, Epilepsy Community, Epilepsy organizations, Family, Famous People with Epilepsy, Kids and Epilepsy, Living with Epilepsy, New Posts, Seizure First Aid, Seizures, SUDEP Awareness, Supporting Epilepsy Programs, Talking About Epilepsy

So here we are…National Epilepsy Awareness Month; 30 days in which we have a platform to push our message of hope, support and advocacy.

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Tags: epilepsy, epilepsy advocacy, Epilepsy Awareness Month, Seizure Safety

Inspiration and Assurance that You Can Live Life with Epilepsy

October 3 , 2010 | Posted by Alysse | In: Being a Parent with Epilepsy, Epilepsy Advocates, Epilepsy Community, Epilepsy organizations, Family, Living with Epilepsy, New Posts, Supporting Epilepsy Programs, Talking About Epilepsy, Vagus Nerve Stimulator

It’s one of my favorite evenings…the Epilepsy Foundation of Michigan’s Flame of Hope Awards. My family and I attended the event on Thursday evening, and as I expected, it was just as moving and inspirational as I expected it to be.

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