Epilepsy Community Category

What exactly defines an Epilepsy Advocate?

If you’re like me, you are so hungry to learn more about your Epilepsy. I can’t get enough data; online, in books, at conferences, from my doctors. In my more than seven years living with this disease, I’ve realized that not only do I gobble up information from my doctors and those various resources, but I’m taught by others who [...]

In the Epilepsy community, there are a few e-communities or chat rooms that are either popular or gaining some great interest by those who live in the Epilepsy world.
I truly think you have to be a bit skeptical and careful about everything you hear and read in some of these chat rooms.

First…my apologies for skipping out on you for the last two days! I was under the weather…I mean REALLY under the weather. I don’t think I can ever recall feeling that sick. Call it the 24-hour flu bug, Montezuma’s revenge, my girlfriend Robin thinks I shake too many hands and caught some major germs, my husband thinks [...]

It’s a new year, perhaps it’s time to shed the negativity when it comes to Epilepsy and band together to fight the fight.

Sunday, quiet Sunday….

January 17 , 2010 | | In: Epilepsy Community, Lifestyles, New Posts

Happy Sunday! It’s just one of those days…I’ve been reading all of your wonderful emails…thank you, by the way–it’s so fantastic to hear from all of you! And, I’m watching the coverage of Haiti. I must say, I’m mesmerized by this human tragedy.  This is a great ‘sub-site’, I guess you can call it, to [...]

Unless you open yourself up to help, it won’t be offered. People are busy with their own worlds and they have their own lives to worry about.

Blame the winter months…the cold and the snow, or call it the post-holiday blues. Whatever you believe might be happening, if you have Epilepsy and you experience the symptoms, chances are good you are suffering from depression.

Alternative therapies for Epilepsy…the question is: do they work and are they truly safe? And, most important, is there an alternative therapy that is right for you?

Someday, it won’t just be ordinary people like you and me who step forward and admit they have Epilepsy. It will be famous people who ‘step out of the darkness’.


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