My group is tight-knit, and I have friends who have known me throughout this journey with Epilepsy and those who knew me long before seizures became part of my everyday life.
Being a caregiver, whether you are talking about Epilepsy or anything else, is one of the toughest jobs on the planet. Really.
In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
So much of what we talk about when it comes to Epilepsy advocacy and awareness centers around erasing the stigma of living life with seizures. Collectively, we wonder over and over…why don’t we, as people who live with Epilepsy or care for someone living with Epilepsy, receive attention…attention we think we deserve?
When exactly do you tell a child about his or her epilepsy and everything that comes along with it? Granted he knows when he’s not feeling well, but as a young child, can he understand what it is that’s making him sick?
A high school football player in Texas collapsed and died Saturday, reportedly after suffering a seizure. He was the star quarterback, had just thrown his second touchdown of the game, was an A student, and had a history of seizures.
We speak so often about our battles…those of us who live with Epilepsy. How often do we stop to realize the challenges our caregivers face?