So much of what we talk about when it comes to Epilepsy advocacy and awareness centers around erasing the stigma of living life with seizures. Collectively, we wonder over and over…why don’t we, as people who live with Epilepsy or care for someone living with Epilepsy, receive attention…attention we think we deserve?

Call it a side effect of living with Epilepsy, or call it a behavioral disorder. I admit, I begin to lose it if we don’t have a 6 month supply of toilet paper in the house.

When exactly do you tell a child about his or her epilepsy and everything that comes along with it? Granted he knows when he’s not feeling well, but as a young child, can he understand what it is that’s making him sick?

The new movie, Secretariat, is inspiring and motivating. It has a lot to do with living life with Epilepsy!

It’s one of my favorite evenings…the Epilepsy Foundation of Michigan’s Flame of Hope Awards. My family and I attended the event on Thursday evening, and as I expected, it was just as moving and inspirational as I expected it to be.

CHEERS to the Epilepsy Foundation of Florida for partnering with a woman named Brenda Bartlett, and their collective effort to give away tens-of-thousands of bicycle helmets in the state of Florida.

A high school football player in Texas collapsed and died Saturday, reportedly after suffering a seizure. He was the star quarterback, had just thrown his second touchdown of the game, was an A student, and had a history of seizures.

Still, with weekly, and most of the time daily seizures…it’s pretty special when you can lose yourself in something, with someone, and for the moment you don’t have to think about ‘the E word’.

It’s not just those with Epilepsy that a service dog can serve. Dogs can be hearing dogs, seizure alert dogs, service dogs for children with autism and guide dogs for people with visual impairments. The world of service dogs, their training and care, is a remarkable one.

We speak so often about our battles…those of us who live with Epilepsy. How often do we stop to realize the challenges our caregivers face?