We speak so often about our battles…those of us who live with Epilepsy. How often do we stop to realize the challenges our caregivers face?

It’s back to school time…When it comes to sending your child with Epilepsy to school, you shouldn’t feel alone. There are many resources that can help.

As for my child, I pride myself on the fact that she has just as normal a life as her friends and classmates, and I work very hard at this. Does her mother have seizures? Yes, but she is cognizant of that and she knows how to react. I surround myself with people who understand and care, from my husband to my very, very close friends. So, I never worry that she is deprived of love and attention.

Epilepsy is one of those illnesses that sort of has tentacles. If you are suffering, you tend to bring others down with you, whether it’s with their concern or their care; but, only the ones who deeply care and want to, or already do understand the condition.

We never conceal my Epilepsy from our daughter. As she grows, I haven’t been quiet about the fact that other parents are not in agreement with this approach. But, as I’ve said, it’s the way we have chosen to tackle parenting when one parent lives with a chronic disease.

I had the most amazing experience Tuesday. It was something I had on my ‘to-do’ list for some time now. I visited Camp Discovery, the Epilepsy Foundation of Michigan’s 5 day-4 night summer camp for kids with Epilepsy.

I was told that one of my daughter’s friends will not be able to come over to our house for a play date because of my ‘situation’ as it was termed. The mother does not want to expose her child to ‘anything scary’, i.e. a seizure.

Epilepsy and SUDEP has become their mission with the Danny Did Foundation. And, they are doing a fantastic job. Their spirit and their drive to raise awareness and try to teach more people about Epilepsy and SUDEP in particular has truly inspired thousands of us!

An Oakwood Hospital (Michigan) pediatric neurologist has allegedly been diagnosing children, hundreds of them, with Epilepsy…FOR CASH. And these kids do not have Epilepsy.

Living with Epilepsy is featured in an upcoming episode of Health Corner on Lifetime.