Thanks to the Epilepsy Foundation of Michigan for a wonderful Summer Stroll season!
My group is tight-knit, and I have friends who have known me throughout this journey with Epilepsy and those who knew me long before seizures became part of my everyday life.
Heading back to work really got me thinking about ability and how able I am to manage my Epilepsy, manage my household, take care of a 5-year-old and…work.
Being a caregiver, whether you are talking about Epilepsy or anything else, is one of the toughest jobs on the planet. Really.
I live in constant fear of when the next seizure will strike; where I’ll be when it does strike and who will be with me. I’m not always public with my fears, but they are incredibly distracting and controlling. Many times, it’s so easy to keep them bottled up.
Having the courage to identify yourself with not just the negative, but mainly the positive is a gift. And, it’s something I’ve worked hard to achieve. I’m determined to not be labeled…
You all…or WE…should be very proud of our efforts to promote Epilepsy awareness. And, I know it’s not over yet. As someone who is always watching the process, I have to wonder: how successful have we been in moving the needle?
In nearly 8 years of my living with Epilepsy, my husband has never really spoken at length to anyone who walks in his shoes. His wife lives with a chronic neurological condition called Epilepsy and he is healthy.
So here we are…National Epilepsy Awareness Month; 30 days in which we have a platform to push our message of hope, support and advocacy.
It’s been an absolutely crazy couple of weeks. Andrew is always, always begging me to limit my stress and how much I take on, but I think this week put me over the top!